Helmet Day

Samantha enjoys her last few minutes of a helmet-free head before her appointment for her DOC band today:
In the elevator!



At our appointment, the clinician took a bunch of “before” photos from all different angles of Samantha’s head. Everyone loved her outfit and thought we had dressed her up especially for the photos haha. Then, the clinician showed us how to put on Samantha’s helmet and had us practice. She had Samantha wear the helmet for about a half hour in her office just to make sure everything fit. Samantha didn’t seem bothered by it at all and only fussed toward the end of the appointment when she was getting tired. I think I was the only one who cried at our appointment…it was just so sad seeing her with this giant white boxing helmet on her head! I have a feeling she’s going to get a lot more snuggle time for the next few weeks since we feel so bad for her!

Samantha’s new accessory for the next eight weeks:

Samantha seemed to be pretty oblivious to the helmet for most of the day, except at nap time. She fought sleep more frequently than usual and hardly napped at all. I’m not sure if it was the fact that she didn’t get a good morning nap while she was at her appointment that ruined her sleep the rest of the day, or if it was just hard for her to sleep with a big foam boxing helmet on her head.

For the next few days, we are supposed to take her band off every three hours, just to check for any red spots from the pressure or weird skin reactions. Today, she had a few small pressure spots, but all of them went away within ten minutes. The band is surprisingly lightweight and doesn’t seem to cause her trouble when lifting her head at all. It definitely makes her warmer than normal, which the clinician said would happen, so she recommended dressing Samantha in light clothes and keeping her out of the sun and out of her car seat whenever possible.

Samantha and Amelia play during one of our helmet breaks today:


Yay! My head is free!





Band back on!




Before bed, we took the helmet off and cleaned it with rubbing alcohol, while Samantha had her bath.
At her usual 7:30 bed time, Samantha was pretty fussy, but eventually she gave in and went to sleep, only to wake up at 9 p.m. crying uncontrollably. I managed to calm her down and get her back to sleep within about ten minutes, but it was still very out of the ordinary. I’m really hoping it’s her lack of quality nap time today and not the band that caused her to wake up…I will seriously throw the band out the window if it obliterates her 11-hour-a-night sleep routine.
I plan on going to the craft store later this week to buy some paint and vinyl stickers to decorate Samantha’s band. The receptionist at he doctor’s office recommended buying some velcro and a bunch of decorative headband flowers that we can velcro on her helmet and change according to the colors of her outfit. I’m hoping once we paint her band, it will look less medical. Poor baby Samantha!
Lots of love,

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  1. Poor baby Samantha! She is still cute as ever. I hope the time with her helmet goes by fast for you.